The crowning moment was when I got prescribed Pregabalin. It is quite a funny story really as my Mum also suffers with symptoms a lot like mine and has also been diagnosed with Fibromyalgia. She got given Gabapentin and was having a really good time on them. Meaning she was up about and active. Feeling very well. So I went to my Doctor to tell him about these tablets and see if he thought I could try them......Well as some of you know one of the other symptoms of this illness is forgetfulness and what we call Brain Fog or Fibro fog. I get a lot of this and in particular this day I had it quite bad. My Mum had wrote the name of the Tablets down for me but I forgot to take it with me and what with all the information I had gathered from online, I couldn't remember what they were called. All I could remember was it was something like pregnant. So was saying it is pre something. The tablets I was actually asking for was nothing like Pregnant!! they were called Gabapentin. So he looked up a tablet that sounded like pre something and came up with Pregabalin. He checked it was o.k for me to take them and prescribed them for me. Once I got in the car and checked my note. I was so disappointed with myself as I had the wrong Tablets. I went home and googled the ones I had and they were actually so similar to the ones I wanted it was uncanny. I thought about them for a few days before I took them but then decided to give them a go and well they are my life changers. They started working straight away. I felt quite high on just one Tablet but happy and so, so chatty it was quite funny and so lovely to feel like this. They soon settled down and I have been able to get out of Bed every day and get small things done each day. I am like a completely different person. At the beginning I was very anxious that I had this new life and it could be taken away so quickly if the Tablets stopped working but after a few Weeks I got used to being able to get up each day and the anxiety wore off. It wasn't a normal life still but such a difference. I was actually able to get things done. I even managed to finish tiling the Kitchen Wall!!
That is one really sad thing about this illness. I told my Specialist the other day about tiling the Wall and he was speechless, I think because I knew how to do it rather than the fatigue thing!! I was always so able to do things. I could do anything that was needed or I would give it a bloody good try before I asked anyone to help me and now I have become ill. Sometimes I cant even get in the bath.... It is just so sad and when at my lowest this is where I go.... to remembering how able I was. How can you not get sad and depressed? Tears are coming now just writing this and I can never see this feeling going. How can you get over that??
Anyway getting on to a brighter note;
Small Rainbow Tuxedo Bow's for Isabella. A bow for every outfit :-) |
Larger Twisted boutique Bow for my Friends Grandaughter's Birthday |
I have been making bow's since my Granddaughter arrived and been practicing on bigger ones lately for when she get's older and also for a Friends Granddaughters. It is something I can do whilst resting. For a while I thought I would never get back into Crafting but now..... thankfully I am back and really enjoying it when I feel well enough. I am trying to do more resting activities. Learning to rest a lot if I have to do something physical. So I am learning at last but it is so hard as if I am having a good day all I want to get everything done whilst I can.
So just to introduce you to my Facebook Craft page if you are into that sort of thing. It is here; Wendy's Crafts I mainly make for friends and family but trying to make it look professional enough to sell if someone ever wanted to buy my items and to also look into making a bit of money with minimum energy :-)
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